Yesterday, Thursday the 24th, was the last day of preschool for Jocie!
We MADE IT!! It was only for like two months and a handful of days, but whew!
We aren't totally finished as we have summer school during the month of June
{which kind of seems silly to me ... they are coming to the house??} but that's okay, its only for one month.
Jocelyn decided to start her last day of school at 3:30am
{yay me! haha} and it wouldn't have been as bad if I didn't feel so totally crummy. I'm sure Boogs felt the same way, but if she did, she handled it better than I did. Who's the real warrior? Yeah, HER by far!
After laying Boogs down for a nap between 6:30-8am, I quickly gave her a bath and put her in a new romper
{we DO NOT wear these often because its hard to get to the g-tube, but they are SO CUTE!}. I of course had to snap a few pictures ... it was the last day of school!! Probably way too many, but I couldn't help myself.
I'm glad I was able to get her to go back to sleep for a little while because she seemed in a good mood and ready to rock-n-roll!
 |
| {She's a fan of her hands in her mouth -- ugh! But she's cute nevertheless!} |
We ended up getting to class before everyone else, so while we waited, I put Jocie in the claw tub with a toy so that I wouldn't have to worry about her falling over on the hard floor while I switched her wheelchair seat from the wheelchair base to the hi/low base. It's a real pain in the butt, but I'm grateful that we have both wheelchair bases for convenience.
Once everyone arrived to the room and got settled, I left for the morning. Since it was the last day of school, Jocie wasn't going to be having any therapies, so I thought I would try my best to stay away most of the morning.
I was successful.
I came home.
Set a few text messages.
Had a snack.
Did some Zumba with the music cranked HIGH!
{normally I have to work out when J's asleep, so its never lough!}
Got lunch together for us both.
Cleaned a little bit more.
Sat down for a minute and did NOTHING.
Then went back to the school.
I was gone a little over two hours -- yea, OVER TWO HOURS!!!
I was pretty stinkin' proud of myself, and everyone said Jocie had a fairly decent day which was nice. Once I got there they helped me switch her chairs out again, gathered all her meds and medical supplies to take home for the summer and were about to see us out the door when I noticed the other kids were about to play musical chairs. I didn't know for sure, but I thought Jocie would think this was fun, so I said
"No, we will stay to the end and walk out with the rest of the kiddos."
I was right. Jocie thought it was hilarious to see the kids going round and round in a circle, me helping her clap to the music and then encouraging the kids that were out to come over to us. Jocie had fun having all the kids next to her, the music and the laughing. Its not something that happens often. Its easy for people to think she can't participate. She doesn't HAVE to bounce chair to chair, but getting her close, singing the songs to her and helping her clap, making a huge deal out of someone getting out, having the other kids come over and facilitate them all engaging with one another ... that's enough. I don't understand why that isn't ... or seemingly can't be done??
But I digress.
At the end of the day all the kids lined up at the door and the Para, Michele, gave hugs.
After lunch and naps, Jocie and I went to the YWCA and swam for the evening. She was having more fun than ever. I don't think the girl stopped laughing for a full 45 minutes. Made me feel good. We came home, ate supper and then went on a walk that evening. It was GORGEOUS out. I love that Jocie enjoys the outdoors so much!
I wish I could say Jocie and I celebrated with a fun lunch or a shopping trip, but sadly, we didn't. Maybe one day? And I wish I could say that Boogs made huge improvements during this short time, but again, that didn't happen. Maybe one day?
But what I can say, is that during these few short weeks of attending preschool, I've had a lot to ponder.
My thoughts
{briefly because I am tired}:
I'm still pretty unsure about preschool. I really don't know if the school system is going to be for us. People try to push their case, and then support it, with the notion that Jocelyn will get socialization, she will be encouraged or maybe driven by seeing what the other kids do, that she will have the opportunity for someone else to work with her, to succeed in a different environment, that I will benefit from someone else taking over and helping, etc.
Those things MIGHT be true ... might.
I haven't really seen the benefit of these potential "good" aspects of preschool just yet, but that doesn't meant that I won't.
What I do know, is that Jocelyn very rarely truly gets to "interact" with the other kids. She spends most of the day with the Para and what do they do? Mostly sing songs and play peek-a-boo. Sigh. I'm not going to go there right now folks because like I said, I'm tired, but this simply won't work for me. And in all honesty, EVERYTHING is hard for Jocelyn ... EVERYTHING is "work." Its hard to find ways ... academically driven at that ... to help her and other kids interact. I don't deny that ... I can see that.
Other things that I know, is that the staff all around don't TRULY understand the concept of WAITING for Jocelyn to respond. Just simply giving her wait time. That they don't understand how her vision and CVI effects everything. How to get her involved visually and motor-wise, or like I mentioned above, how to include her appropriately. And again, this is my opinion ... which lets face it ... its the one that matters folks.
Is it "hurting" Jocie to be in preschool? No, I don't think so. But its important to weigh what we want out of each day and I'm just not convinced this is it.
I've also had people tell me "
Jocie will make friends and they will follow her through school..." Simply NOT TRUE! Or at least not according to a conversation that I had with the teacher this week.
One good thing about me, and bad, is that people tend to tell me everything before they even know it. Our preschool teacher is no exception.
I can't be upset at her though because if she didn't prep me now, then when it came time for Jocelyn to enter Kindergarten, I would be livid.
What am I talking about?
Come to find out, in the next two years, if Jocie doesn't drastically improve in her motor skills, her communication abilities or her ability to demonstrate her cognitive level; then come Kindergarten, she will be transferred to a school that is more equipped for kids
"with more extensive needs." So what does that mean? That means that not only would she be in a different school away from anyone that she has gotten to know over the last two years, but then she would only be around
"like kids." Some might be
"better off" and others might be
"worse off" {and all that "better" or "worse" crap is perspective because what is better for some is worse for others}.
This isn't something that I should
"worry about right now" but that its a
"possibility." When I asked the reasoning for the segregation
{and out of genuine curiosity}, I was told its because THAT school had wider hallways, bigger classrooms and everything is
"set up" better for
"these types of kids."
To an extent, I can understand the rationale for doing this in regards to money, resources, etc. And to be honest, no, if the other kids are doing division or a science project that Jocie can't do, it would be pointless for her to be in there. However, I'm not going to have her sitting in a room doing nothing but looking at pinwheels and shiny objects
{and yes, I'm being extreme, but I'm annoyed ... and no, I'm not trying to be nasty because some more involved kids truly do get great enjoyment out of those kinds of things and I would NEVER ... lets be clear ... EVER intend for my words to be hurtful in that manner}. But I don't want her in a classroom where the expectation is that she's not going to succeed either.
Sorry, but I've got a better quality of life in store for my girl.
Yes, we will cross that bridge when we get there, but damn does it leave a sour taste in your mouth at the end of the year.
That's all I'm going to say for now because I.MUST.SLEEP!